Reflections along the way of a terminal illness

Katie and Maggie sharing a moment of sadness. Maggie knew!

Katie and Maggie sharing a moment of sadness. Maggie knew!

Today, three years to the day after Katherine’s (“Katie’s”) death (May 9, 2010), we inter her cremains.

IT’S RAINING, IT’S POURING” was written the day we learned that Katie’s incurable Leiomyosarcoma had taken a turn for the worse. In memory of Katherine (“Katie”) Elizabeth Slaikeu Nolan.

Gordon C. Stewart Feb. 11, 2009

It’s raining, it’s pouring
The old man is snoring
He went to bed and he bumped his head
And couldn’t get up in the morning

It’s a day like that. I bumped my head on the illness of a 33 year-old loved one. It’s raining sadness. I’m having trouble getting out of bed in the morning.

Terminal illness has a way of doing that unless you believe in miracles of divine intervention or you have extraordinary powers of denial.

My spirituality has become increasingly like that of Rebbe Barukh of Medzobaz, an old Hasidic master in Elie Wiesel’s tale of Four Hasidic Masters and Their Struggle Against Melancholy. When he prayed the customary Jewish prayer, “Thank you, Master of the Universe, for your generous gifts – those we have received and those we are yet to receive” – he would startle others with his weeping. ‘Why are you weeping?” one of them asked. “I weep,” he said, “in thanksgiving for the gifts already received, and I weep now for the gifts I have yet to receive in case I should not be able to give thanks for them when they come.”

For my family at this critical time, the real miracle has already occurred – the shared gift of love – and it will come again in ways I cannot now anticipate when the last page of the final chapter of our loved one’s life is over.

The miracles are more natural, nearer to hand. Although I don’t believe in selective divine intervention, I am on occasion a sucker for denial – except on days like this when it’s raining and gray and I’ve bumped my head on the hard fact that cancer is ransacking my loved one’s body. A certain amount of denial, too, is a blessing in disguise, one of God’s generous gifts to keep us sane when the rain pours down and clouds are dark.

Faith comes hard sometimes. In college mine was challenged and refined by Ernest Becker‘s insistence that the denial of death lies at the root of so many of our problems. My faith has been refined along the way by the courage of Albert Camus and Jean-Paul Sartre to face the meaninglessness of the plague, the faith and courage of Dietrich Bonhoeffer and Paul Tillich who stuck their fingers in the gears of Nazism, and the humble witness of Mother Teresa working in the slums of Calcutta with more questions than answers and some anger at God.

The job of faith, as I see it, is to live as free as possible from illusion with a trust in the final goodness of Reality itself, despite all appearances to the contrary. Faith is the courage and trust to look nothingness in the eye without blinking or breaking our belief in the goodness of mortal life.

When I look into my loved one’s eyes I see that courageous kind of faith that defies the cancer to define her, and a resilient spirit that makes me weep tears of joy over the gifts we’ve already received and the ones we have yet to come.

It’s still raining and it’s still pouring, but I refuse to snore my way through this. I’ve bumped my head on the news of a loved one’s terminal illness, but I’m getting up in the morning.

POSTSCRIPT March 21, 2012

Conversation yesterday about “The List” posted on Bluebird Boulevard:

Karen:

My mother died of cancer eight years ago. Her loss is still visceral. She is in every bird I see.

Me:

The morning of Katherine’s memorial service Kay, Katherine’s mother, was standing by the large picture window gazing out at the pond in our back yard. Out of nowhere, it seemed, two Great Blue Herons flew directly toward the window and swooped upward just before they got to the house. “She’s here. That’s Katie,” said Kay without a second’s hesitation. On her last day of hospice care, Kay and I each remarked that her face looked like a baby bird. I’m a skeptic about such things. I’ve always been, and always will be, a doubting Thomas. My assumptions and conclusions come the hard way. But on the day the herons flew directly at Kay from across the pond, I saw it with my own eyes…and HAD to wonder.

Within a minute a third Great Blue Heron perched on the log by the edge of the pond and stood alone for a LONG time. It reminded me of a gathering on the steps of the State Capitol in Saint Paul following the tragic deaths of school children at Red Lake, MN. The crowd stopped listening to the speaker. They were looking up. “What’s going on?” I asked Richard, the Red Lake American Indian advocate and my co-worker at the Legal Rights Center.org. “Eagles,” he said. “Where?” “WAY up. They’re circling.”

I learned later that the eagles were also circling at that same moment over the grieving families gathered at Red Lake. I asked American Indian colleague what he took it to mean. “We don’t ask. That’s the white man’s question,” he said. “We just accept it. We live in the mystery.”

Katherine Slaikeu Nolan

Katie and Chris at Arenal Volcano, Costa Rica

Katie and Chris at Arenal Volcano, Costa Rica

Today we inter Katherine’s (“Katie’s”) ashes – three years to the day after she left her cancer behind at the age of 33.

It takes awhile sometimes. The stages of grief don’t come in standard sequence like the innings of a baseball game.

In “The Final Time” in Max Coots’ collection of poetic prose, Seasons of the Self (Abington Press, 1971), he wrote:

It takes a little while to know how much of life is death and not to dread it so.
To sense the equilibrium of the earth,
To be at home in time, and take the limits of both life and love.

A person’s death is a private thing, like grief, like prayer, like birth.
I know nothing of that final time, except what I know of life,
But I know I live and in my life I have so many opportunities to die,
For death is many things and times,
Before the days are gone,
But I have, yet, a while, and things to be, and much to do.

Max Coots is a poet and Minister Emeritus of the Canton Unitarian-Universalist Church in Canton, NY. His words still echo today as the family gathers to lay Katie’s ashes to rest. Special prayers today for Katherine’s husband Chris, her mother Kay, her father Steve, and her siblings Kristin and Andrew.

It’s the little deaths before the final time I fear.
The blasé shrug that quietly replaces excited curiosity,
The cynic-sneer that takes the place of innocence,
The soft sweet odor of success that overcomes the sense of sympathy,
The self-betrayals that rob us of our will to trust,
The ridicule of vision, the barren blindness to what was once our sense of beauty –
These are deaths that come on so quietly we do not know when it was we died.

Precious Lord, deliver us from these, and grant us peace within the limits of life and love.

You should be ashamed of yourself!

Ever want to say OUT LOUD how you REALLY FEEL and why … without self-censorship?

Carolyn sent this to every Senator who voted against “gun safety” in the U.S. Senate.

Gun SAFETY

The Second Amendment to the Constitution was written by men whose notion of “gun” was a musket needing reloading after each shot.

With your recent votes on gun safety, you represented the interests of manufacturers of guns and ammunition, and voted against the safety of Americans, as well as against the expressed wish of 84% of us. You also spit on 26 graves in Newtown, CT, and on those of many, many thousands of other victims of gun violence.

You put forth high sounding phrases, and tell lies about the effects of the bills, but we know that your sole motivation was and is to keep collecting legalized but still immoral bribes from the gun manufacturers and to keep the votes of those few Americans who either think serious differences of opinions are best resolved by violence or threats of violence, or the subcategory who think they some day may need to solve differences of opinion with our democratically elected government by armed insurrection — that is, treason.

To be sure, very many (not all) Senators bury their dead consciences before taking the oath of office, and you are clearly one of the many who did. Therefore it behooves me to remind you that you should be heartily ashamed of yourself.

Carolyn and I went to Kindergarten together. Our families were closest of friends. She is now retired from the University of Pennsylvania Music Library, well-versed in the do’s and don’ts of ascribing motives. Carolyn is also VERY polite; her speech is routinely moderate and carefully considered, but she decided on this one to throw caution to the wind.

“I’m certain it changed no minds,” said Carolyn’s email to me, “but it was a relief to me somehow to ‘tell them off.’

“I sometimes quarrel with myself about things in it like ascribing motive — “…we know…”. But it certainly is how I feel. …[T]hen I reassure myself — there are many who make the same assumption. What’s more, I think it is a fair one.”

When you look at the fact that the 45 U.S. Senators who voted against “gun safety” received in excess of $8,000,000 in campaign contributions from the NRA and gun manufacturers, it’s hard not to go where Carolyn went. These Senators know that the Second Amendment would not have been breached by the bill sponsored by their two courageous Senate colleagues who chose to do the right thing despite their A ratings from the NRA.

Designated Driver

I had 2 drinks in 4 hours–
they each guzzled 10 or more:
Scotch & sodas, gin & tonics,
wines with dinner, bottles pour
port and Irish cream and brandy,
Chambord, ouzo, B & B.

Friends for years, they each had stories–
I, of course, had heard them all
many times before: the punch lines
had no punch– they each just fell
on the dirty dishes, greasy
napkins, glasses finally empty.

– Steve Shoemaker, Urbana, IL

I’m SURE this is a very old memory!

Ode to Mama

Leah Thomas and family

Leah Thomas and family

Leah Thomas was known as “Mama” by her clients. She was an attorney at the Legal Rights Center in Minneapolis when she “fainted” at a coffee shop on her way to work. This poem was read at her funeral. We called her Mama because she treated the “juvenile offenders” she represented as though they were her own children. Leah’s older brother had been a member of the Black Panthers in Chicago.

ODE TO LEAH THOMAS

Like light
Like joy
Like sun breaking through a storm
Her laughter
Brightens the room
Breaks the ice
Fills it with peace.

Mama walks lightly
Amid the trials and the cares
Quick as a black panther
Steady as a turtle
She coos the tenderness of
the turtle dove
walks with the strength of a lion.

With steady hand
With sturdy faith
And clarity of mind
She laughs
And soars her craft
Through clouds and storms
To lead us on and through.

Like light,
Like joy,
Like sun breaking through a storm,
She laughs,
She brightens the room,
She wipes our tears
She fills us with her peace.

– Gordon C. Stewart, Executive Director, Legal Rights Center, Feb. 1, 2005.

Sebastian

Sebastian

Sebastian

The puppy shyly made his way across the living from floor to Kay’s feet.

At six-weeks old, he was cute, but he was a “he”. We wanted a “she”.

We had called ahead to ask whether any females were left from the half Bichon Frise – half Shih Tzu litter.

By the time we arrived, the females had been taken. Since we were there and the puppies were out, we stayed to watch them play and to get a better sense for the breed.

Disappointed that there was no female, but unable to forget the pup that came to Kay, we got back in the car and headed for home.

Two blocks from the kennel, Kay broke the silence. “I can’t leave him. I love that puppy. We have to go back and get him.” We went back and got him. Kay held him in a blanket on the way home.

We named him Sebastian. He just seemed like a Sebastian.

Thirteen years later, April 20, 2013, Kay held him once more in a blanket … on the way to the veterinarian.

I keep waiting for him to follow me up or down the stairs, settle by my feet at the computer desk, nuzzle up to my thigh during our nap, pester us to go upstairs when it’s bedtime. The house is not as full.

We got a “he” for a little while. A gift named Sebastian. We never “owned” him. We don’t really own a thing.

Maggie (Acrostic)

Maggie and Morning Love

Maggie and Morning Love

(Tribute to Maggie)

Magnanimous mellifluence,
Attentive, affectionate, alert,
Good dog, as good as any
God could ever send to such as
I, the aging friend she trusted
Even at the end.

– The day after Maggie left us, April 23, 2013

Empty House

Maggie waiting to play

Maggie waiting to play

Maggie and Sebastian romping in the snow

Maggie and Sebastian romping in the snow


Today the house is empty for the first time in 14+ years. I keep listening for the sounds that are no longer here, the footsteps and voices of Maggie (14+ yr. old Westie) and Sebastian (13+ yr. old Shih Tzu -Bichon-Frise).

The day after Sebastian died on Saturday, Maggie’s tumor broke through the skin. She’s always been a brave trooper. The vet said that Westies are the toughest in bearing pain. But she was not herself. She was in pain. She couldn’t walk. She was grieving. She was bleeding. There was no way back. No way to make it better. There was no joy. I loved this dog so much. Maggie’s been my companion for all these years. They say Westies are the most human of dogs. It was true of her. She was all love and all play. I wept like a baby yesterday, as I had on Saturday, when we “put her down,” as they say.

The house is empty of Maggie and Sebastian. But it is not empty of love. Kay, who is more in touch with her feelings than I, expressed them well this morning in an email to her friend Mary.

Empty…..that’s exactly it. Empty….rattling around in a cage that used to have a wheel for multiple animals, moving, squeaking, flying high, deliriously fun and noisy noisy noisy…… And now dead silence, nothing. They left the cage for whatever eternal freedom awaits us all…..there had better be an assemblance of a heaven full of love and resurrection of all the bodies of those we love or I won’t go.

It was the right time, completely worn out caring for two pups that needed carrying everywhere all day and even “up” to get a drink in the night, or outside to pee in the dark of 2:00 am…..we’re too old for this…..but we had no need for NOTHING, no lovely, characterized soft dazzlingly sweet creatures, instead.

We went to bed last night, finally getting to hold each other without the crowding of legs and the sooo familiar and comforting creaturely bodies nestled together…but we were left without a “pack” and we had no “fam”……something that filled every crevice of our lives so completely. We cried together and held each other, but there was no real consolation, since right now it is ALL LOSS. This place will be filled in with new energy or new peace, we will get to be tranquil…..but we have less spunk and personality and affection, oh so much less of everything precious.

I hold the “rubber band of my ambivalence” in high tension. Here it is 4:45 am and I am having a quiet time by the fire with my morning coffee…..a week ago I would have to hope and pray that one or both (not simultaneously) would not have to be brought down to pee……so I would break into my warmth serenity to put on shoes, coat, ear band, get a little sack, a leash, different shoes, go out in the cold, wait endlessly for them to find just the right smell, or the right place that hadn’t been used before, and they never wanted to come in, because frozen smells from other dogs were infinitely more wonderful than house smells….so I would have to practically drag them inside again….then feed them, and put them on the couch on the soft blanket across from my chair, get them all settled…go back to my chair, get settled, my coffee, my ipad……and, you know what would happen next…..they both would come off the couch and want to sit with me on my chair (half the size). They were always undeniable, however much I tried, I would say no, ignore, plead, but if a Westie wants something, there is no denying her, however much you try to command that breed, why would I ever even try, after 15 years, I should know….so up goes the coffee cup to the table, the ipad to the table…..I reach down to scoop her up (and sometimes him too, all 3 of us on this little chair)…. I am scrunched sideways, contorted to get them to settle down so they will sleep again….and, again grab my coffee, my ipad, start reading or writing (which presented an even more contorted arrangement above their lounging bodies because I would have no lap then)……… And then….and then…..they eventually, 3 minutes, 5 minutes……they would want down again.

The sadness I hold in my heart – the desire, the physical ache for their return – is a study in ambivalence. I am nuts with sorrow for something I have been waited for for a long long time.

Love conquers all, I tell you. Even high maintenance love. Their 13-14+ years of collective memories will permeate my soul with sadness that will eventually lift to the highest level of sweet sweet melancholy……….but you and I will know the bottom line. The tension is now resolved, and with grave sadness I walk forward into my freedom unencumbered.

Thanks for hearing my 5:00 am confession, my soiled sadness. I know you understand. You spent years in the same condition with many of your dogs before they died. You would have similar tales to tell. I guess dog people are just special souls.

“Lord, help me be half the man/woman my dog thinks I am.”

Is there no cure for these?

Gordon C. Stewart April 11, 201

Today the Senate begins a floor debate on gun control that brings to mind an earlier “floor debate” several months ago in Chaska, Minnesota.

Ever since the community Dialogue on “Gun Violence in America,” I’ve searched for answers to what happened.

A crowd of 138 people came out on Tuesday night to chime in following the tragedy at Sandy Hook in Newtown, Connecticut.

As the night wore on, it became clear that there would be no real dialogue, no moderated discussion. No give-and-take. A series of monologues, without interruption and with a time limit, was the best we could expect.

Fear, anger, hostility and suspicion were in the room. The room was hot.

The months following have been a personal search for understanding of what happened that night, and how we in America move forward together on such a divisive issue.
———————————-
Imagine two people going into separate audiologist booths for hearing exams.

John grew up in rural America. Betty grew up in the city.

In their hearing booths Betty and John repeat the word they hear.

“Say the word ‘gun’, says the audiologist.

“Gun.”

Their hearing is good. They say the same word.

—————————–

After the hearing test, John and Mary are taken to different rooms for interviews. A social psychologist wants to know what emotions and thoughts are triggered when they hear the word ‘gun’.

“I’m going to give you a word. After you repeat the word, I want you to give me the other words that come to mind. It’s called “word association”. Don’t think about it. Just say whatever comes to mind.

“Gun”:

    John:

“Safety, protection, coyotes, wolves, cows, cattle, sheet, careful, responsibility, civil right.”

    Betty:

“Run, violence, threat, death, war, robber, gangs, school massacres, NRA, Sandy Hook.”

NRA:

    John:

“Second Amendment, right to bear arms, protector of civil liberties, defender of the Constitution.”

    Betty:

“Right-Wing, powerful, myopic, out-of-touch, vigilantes, white supremacist, radical, dangerous.”

Gun control:

    John:

“Government, anti-democratic, anti-Constitutional, intrusion, loss of freedom, fear, police state, socialism.”

    Betty:

“Safety, safe home, necessity, protection, peace, hope, end of fear.

Kingdom of God:

    John:

“Hmmm… Soul, salvation, heaven?”

    Betty:

“Hmmm… Safe streets, the common good, love?”

————————

Both are church members. They are practicing Christians. Betty and John pray the Lord’s Prayer. “Thy (Your) Kingdom come; Thy (Your) will be done on Earth as it is in heaven.”

Could the common bond of Jesus’ prayer bring the two into the same room in a shared search for understanding and action? Or are the formative cultural experiences so determinative that faith and religion are what Marx said they were – blinders that prevent them from seeing anything but what we’ve already chosen to see?

Perhaps some singing might help – a hymn or two – and reflection on the lyrics, like those of Fred Pratt Green (1969):

O Christ, the healer, we have come
To pray for health, to plead for friends.
How can we fail to be restored,
When reached by love that never ends?

From every ailment flesh endures
Our bodies clamor to be freed;
Yet in our hearts we would confess
That wholeness is our deepest need.

How strong, O Lord, are our desires,
How weak our knowledge of ourselves!
Release in us those healing truths
Unconscious pride resists or shelves.

In conflicts that destroy our health
We recognize the world’s disease;
Our common life declares our ills:
Is there no cure, O Christ, for these
?

Good Friday 2013

Today is Good Friday.

Two pieces enriched the silence today. The first arrived early this morning.

Testimony

In Mark, the earliest account, the name
is given of the man who from the crowd
was forced to lift and carry the crude wood
cross that some carpenter had made the same
day. Simon of Cyrene is named, and then
the names of his two sons–as if they were
still living and could testify that their
father was one of the witnesses when
Jesus was crucified. Women were named
who saw the body buried in the grave,
and later returned to the empty cave
and found the heavy round stone had been rolled
away. Joseph of Arimathea
had given his own family tomb away.

But you are skeptical and full of doubt
that Christ is risen–you should check it out.
See that his followers who ran away
now risk their own lives when they sing and pray.
His students now have students. Many saw
him after death. They live and testify.
His movement grows, and some react with awe
and pass the story on, still testify…

– Steve Shoemaker, Urbana, IL, Good Friday, 2013

The second arrived this afternoon.

Click HERE to read Dr. Matthew Boulton’s Good Friday reflection in the Indianapolis Star. Matthew carries on the story as President of Christian Theological Seminary in Indianapolis, Indiana. Matt is the son of Wayne, my seminary roommate and best friend since 1964. “They live and testify. His movement grows, and some react with awe and pass the story on, still testify…”